Yesterday we headed back to Childrens Hospital in Washington DC to see a pediatric ENT for Eli's recurring croup and breathing problems. Unfortunately the news was not great. He will need to have an endoscopy procedure done on June 25th. At first I was not too worried about it, but as we got further into discussion with the doctor, I started to feel sick to my stomach. Since Eli has a heart condition, he has to be cleared to go under anesthesia by his cardiologist. He also has to be cleared by his pediatrician. The procedure itself is a minor one, but there is also a very slight chance that once the doctor looks at his trachea, he will need to have further extensive surgery. I know the doctor has to tell me worse case scenario, but it brought me back to the Eli that was 5 weeks old and in SVT. The doctor told us at that time that all he would need is a dose of medicine at the hospital and he would be fine. Eli seems to have a way of making the smallest things become ENORMOUS! It was a fluke that Eli ended up going into heart failure, needing to be intubated and sedated, and spent 2 weeks in the Cardiac ICU. He just has a way of falling into the worse case scenario category. Either way, I know Eli is a very strong boy and will be just fine and I also know there is no better place for Eli to be than at Childrens Hospital.
Please just keep him in your thoughts and prayers.
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2 comments:
Elyse and Joe,
You and the boys are in our thoughts and prayers. Eli is very strong and will be great during this procedure. Having a child with a problem is always so hard, no matter the problem. We just thank God, when you have a child with a problem, it's one that can be fixed and that we live near places that can fix sick kids! Let us know if there is anything we can do to help. Love and miss you guys.
Donna
Sorry I haven't had a chance to call to go back and forth on our kids ailments. At least they are managable. I will be praying for Eli. He's one tough cookie. Love, Sara
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